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Experiential information processing in online communities among patients with rheumatoid arthritis Options
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SarahB-NRAS
#1 Posted : Thursday, March 25, 2010 11:38:19 AM Quote
Rank: Administration

Groups: Administrators, Registered

Joined: 11/26/2009
Posts: 13
Hello all

We have had a request from Hana to advertise her study to all you forum users:


Volunteers with arthritis wanted for research study

“How do patients with arthritis seek information in online health communities?”

• Are you above 16 years of age?
• Do you have arthritis?
• Do you seek and (or) share information in online forums?
(e.g. Arthritis Care, National Rheumatoid Arthritis Society)

If you answered YES to all these questions, we would love you to get in touch and participate in our study.

The purpose of this study is to explore how patients gather information in online communities to inform decision making.

As a participant, you would have a face-to-face individual interview, lasting approximately 1 1/2 hours.

In appreciation for your time, you will receive a gift voucher.

For more information, or to volunteer for this study,
please contact:

Hana Ishak
Business Systems Division, Manchester Business School, University of Manchester, Booth Street West, Manchester M15 6PB
0161 3062075 (office)
07982 664839 (mobile)
E-mail: hana.ishak@postgrad.mbs.ac.uk

This study has been reviewed by, and received ethics clearance
through Northwest 8 Research Ethics Committee – Greater Manchester East (reference number 09/H1013/79)
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JulieM
#2 Posted : Thursday, March 25, 2010 2:11:15 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/4/2009
Posts: 1,524
Location: W. Yorkshire
Sarah-NRAS wrote:
Hello all

We have had a request from Hana to advertise her study to all you forum users:


Experiential information processing in online communities among patients with rheumatoid arthritis

Invitation to participate in a study

My name is Hana Ishak and I am a PhD candidate at Manchester Business School, University of Manchester.

I am looking for volunteers to take part in an individual interview.

To be eligible in the study, you must:

• have a diagnosis of rheumatoid arthritis,
• be aged of above 18 years old,
• have a need for information related to treatment, and
• seek and (or) share information in online communities for rheumatoid arthritis or arthritis, (e.g. online forums provided by National Rheumatoid Arthritis Society (NRAS) or Arthritis Care).

The purpose of this study is to explore how patients gather information in online communities so as to inform decision making.

I am particularly interested in how people gather and make use of information about other peoples’ treatment experiences.

Your data will remain anonymous. Involvement in this study will not affect or influence your usual clinical care.

The interview will take approximately 1 hour and will be conducted at Manchester Business School, University of Manchester.

The interviews will be conducted from April 2010 until October 2010. Suitable date and time can be arranged.

If you are interested, please contact me and I will provide you with further details of the study.

Thank you,
Hana Ishak

Contact details
Address: Postgraduate Research Programme Office, Manchester Business School, University of Manchester, Booth Street West, Manchester M15 6PB
E-mail: hana.ishak@postgrad.mbs.ac.uk, hana.ishak@gmail.com
Work telephone: 0161 3062075
Mobile telephone: 07982664839

Name of Research Ethics Committee: Northwest 8 Research Ethics Committee – Greater Manchester East

Research Ethics Committee reference number: 09/H1013/79


Bit too far for me I'm afraid.
I'm wondering why, after it says Rheumatoid Arthritis, does it then say just Arthritis?

YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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merryberry
#3 Posted : Tuesday, March 30, 2010 10:03:27 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 11/28/2009
Posts: 238
Location: North London
I'd love to contribute - but the journey!
If you get to feedback, it goes like this:

1. if i was family-free, i'd do it, but find the travelling a physical strain and the expenses a financial one. I'd have to not to other cherished plans in that month.
2. i would be worrying that health would hold up for the appointment time, would hate to commit to it and then not be able to make it, as going on such a journey would require pretty optimal health
3. but i have a family, and every month i already use up loads of people's good will , and also our budget, to have the children sat while i attend health appointments.

Can it be done by telephone? By webcam? by visit to our houses?

xfx
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SarahB-NRAS
#4 Posted : Monday, April 19, 2010 11:13:26 AM Quote
Rank: Administration

Groups: Administrators, Registered

Joined: 11/26/2009
Posts: 13
Thank you for your interest JulieM and merryberry. I have emailed Hana to enquire about the possibility of conducting the interviews by telephone or webcam. I will let you know when I hear back from her Smile
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SarahB-NRAS
#5 Posted : Tuesday, April 20, 2010 2:05:19 PM Quote
Rank: Administration

Groups: Administrators, Registered

Joined: 11/26/2009
Posts: 13
Hana has been in touch and would be happy to conduct the interview over the phone or via a webcam.

If you would like any further details about this study please don't hesitate to contact Hana and she will be happy to answer any questions you may have:

Hana Ishak
0161 3062075 (office)
07982 664839 (mobile)
E-mail: hana.ishak@postgrad.mbs.ac.uk
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